Chris was diagnosed with Autism Moderate when he was 4.5 years old. We waited for a diagnose assessment for over two years. Getting diagnose was such a bittersweet moment, but he was able to access funding since June 2017 (8K-10K). He has been getting 20 hours a week of intense ABA therapy since November 2017. Chris had elopement issues; we were not able to go to the park or mall without holding his hand because we were afraid that he was going to run away from us. He did not have more than 60 words in his vocabulary and he did not know how to express his needs and or wants with words. Hi used to self-harm during meltdowns. He would not answer to his name and have very litter eye contact.
With therapy he is starting to use his words to communicate his needs/wants in 2 or 3 words, we are now able to get to the mall without having to hold his hand. He is staring to develop interest in playing with his brother. We are very worry about Chrisí future because we cannot pay for the intense therapy that he needs. We are worry that he would regressed. The new Autism Ontario Program will give us about $4.8K a year instead of the $77K a year that he needs. We worry about his future and most of all we worry about he being able to be independent and he being able to provide for himself.
The new OAP this worry is taking away our tranquility. We have not been able to sleep for more than 6 hours since the announcement just thinking of ways that we can give him the therapy that he needs. We have look into moving provinces. We have gone as far as looking for therapy in other countries. We have family in Colombia and we are considering separating our family (by this I mean that my husband would stay in Canada and I would move with the kids) so that we can give Chris the therapy that he needs. I spend more than 4 hours a day in social media reading to news, watching QP, tweeting, writing and being informed always looking for what is next. This process has been exhausting but we will continue fighting until our kids get the therapy he needs. We will continue writing as many letter as they are needed because Autism does not defined us.