Hello! My son Alex has Severe Autism and unable to go to school yet as he is Limited Verbal, Sensory boy, Mouthes non edible objects and has strict diet due to multiple allergies. He was diagnosed with Pans/ Pandas last year as well that stands for Pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS) is a condition that there exists a subset of children with rapid onset of obsessive-compulsivedisorder (OCD) or tic disorders and these symptoms are caused by group A beta-hemolytic streptococcal (GABHS) infections.
He needs at least of 33 hrs of Intensive ABA therapy, one on one and he really benefited it last year as he gained some skills, toilet trained, stop spitting (before he was spitting non stop for 2 years) which made us isolated from society.
The new OAP plan even with new enhancements wont work for us as we cant afford Intensive therapy at all. 5K is not sufficient even for a month of all his therapies and our debts only growing and we are even selling the house currently as we cant afford mortgage and other related fees.
Its really heartbreaking and devastating news for us and our family as we are losing hope that my son will live a normal independent life. It really affect my husband, my another child and myself as our health conditions getting worse due to all these financial burdens.
We hope that the government would listen, consult the experts and make a correct decision.